At 11 I was diagnosed with motor tics. It was only the muscle fibers ticing the first time. After that it changed into motor tics but was not disabling. The tics manifested before bed time as head jerks and arm rising. The tics became a bigger problem in the 8th grade. It was after we had moved to Tennessee a few months into enrolling into school.
I was in class and my arm was rising over and over. I knew it was a motor tic since I had them before. After that the tics started changing. I started standing up, clapping and stomping repeatedly all at once. Sometimes the tics made me jump out my chair while other times it made me throw stuff. Other times it was just clapping over and over. It caused a great deal of pain and my hands.
When I went to the dr to see if I could get some medicine, I believe it was Zoloft. The medicine had no effect on my tics and caused extreme dizziness to the point I passed out when walking. I discontinued used. We were planning on trying another medicine but the tics died on their own turn back into minor motor tics.
The next time I had a tic bout was in the 12th grade. It started with neck jerking and eye blinking. The tics started changing and getting stronger. The neck jerking and eye blinking became stronger causing a lot of immense pain in my eyes, neck and shoulders; the only thing I have to help the pain is to get massages. I also started symptoms of coprolalia saying words like shit and fuck.
Sometimes I would tic so much I could not pick up silverware and showering and other hygienic activities were harder to do as well as dangerous.
The tics changed quite often sometimes from second to second to times where I had a week of no tics and then I would start ticing with new tics add and sometimes some subtracted. That week is the only waking time I have with no tics. The only other time with no tics is when I’m sleeping.
I tried again to find some medicine that could ease my tics and bring me some relief but none of the medicine worked. One of my dr., Dr. Chin, told me of one last drug that was useable but he did not want to try it has it has one of the highest fatality rates among users.
After that I stopped searching for treatment since the other medicines, Tenex, Haladol and Orap had no to ill side effects on me.
The newest tics started to become quite self-injurious and severe. I have started punching myself in different parts of my body from chest to legs to face and head.
I punch walls, cabinets and whatever else is near. I have also banged my head against the wall a few times. As well I started biting my arms and heading walls and such. It causes me great of pain in my arms to where it’s hard to pick up objects.
The Coprolalia has increased to the point where I am shouting several cuss words and saying sentences while the Copropraxia or ticing lewd gestures, as just started back up. I am showing signs of echolalia and echopraxia which is echoing people’s words and actions
When the tics get very severe I cannot do tasks like washing my clothes as my washer and dryer is down stairs and I’ve nearly fallen down the stairs to the basement as well as the ones to my back yard when I was going to mow.
A couple tics make it a little harder to walk. I have one tic where I hop ever few steps, another tic I squat low to the ground,stick my arms out and hop a few times.
I also have a few tics where I will run up and down the hallway. That tic has yet to happen in public yet.
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